Motor neuron disease (MND) is a group of progressive neurological disorders that affect the nerve cells controlling voluntary muscles. It leads to muscle weakness, stiffness, and eventual paralysis as the nerve cells degenerate and lose their ability to communicate with the muscles. MND encompasses conditions such as amyotrophic lateral sclerosis (ALS), primary lateral sclerosis (PLS), and progressive bulbar palsy (PBP), and while there is currently no cure, treatment focuses on managing symptoms and improving quality of life through medications, therapy, and supportive care.
Patients are the experts in their condition and advocacy groups provide a platform for patient voices. Working directly with these communities is the key to pushing research forward in an inclusive way.
Motor Neuron Disease (MND), a group of progressive neurological disorders that affect motor neurons in the brain and spinal cord, affects many people around the world. MND can impact individuals of various backgrounds, genders, and ages. By bringing attention to Motor Neuron Disease, we can work towards improving the lives of individuals living with this illness and advancing our collective efforts to combat it.
Read more...
We’re ready to keep forming links between our Advocacy friends and Pharma partners, so these fruitful relationships continue to evolve beyond the study-to-study view.
Read more...
The ever-growing investment in advocacy doesn’t appear to be slowing down, and research is certainly seeing the benefits. Which at the end of the day, means better patient care and more options for patients.
Read more...
We’ve committed to having 500,000 conversations in the next three years, to equip ourselves and our Pharma partners with the insights needed to increase predictability.
Read more...