Scleroderma is a rare and chronic autoimmune disorder that causes the skin and connective tissues to become hard and thickened. It can also affect the blood vessels and internal organs, leading to various complications. Symptoms of scleroderma include skin tightening, joint pain, Raynaud's phenomenon, and digestive problems, and it requires specialized medical care from rheumatologists and dermatologists.
Pennsylvania
My scleroderma is getting worse. Now, I have to go see gastroenterology at Temple University. My scleroderma is limited and is secondary to the pulmonary fibrosis.
Patients are the experts in their condition and advocacy groups provide a platform for patient voices. Working directly with these communities is the key to pushing research forward in an inclusive way.
We’ve committed to having 500,000 conversations in the next three years, to equip ourselves and our Pharma partners with the insights needed to increase predictability.
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The ever-growing investment in advocacy doesn’t appear to be slowing down, and research is certainly seeing the benefits. Which at the end of the day, means better patient care and more options for patients.
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We’re ready to keep forming links between our Advocacy friends and Pharma partners, so these fruitful relationships continue to evolve beyond the study-to-study view.
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