Charcot-Marie-Tooth (CMT) disorder, also known as hereditary motor and sensory neuropathy, is a group of inherited neurological disorders characterized by progressive damage to the peripheral nerves, leading to muscle weakness, sensory loss, and foot deformities. Symptoms typically begin in adolescence or early adulthood and can vary widely in severity, even among affected family members. While there is no cure for CMT, management focuses on symptom relief, physical therapy, orthopedic interventions, and assistive devices to improve mobility and quality of life.
Patients are the experts in their condition and advocacy groups provide a platform for patient voices. Working directly with these communities is the key to pushing research forward in an inclusive way.
Despite affecting a significant number of individuals, Charcot-Marie-Tooth Disorder (CMT) still lacks widespread understanding, emphasizing the pressing need for increased awareness and support initiatives. At Leapcure, we're dedicated to helping patients and advocates.
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We’ve committed to having 500,000 conversations in the next three years, to equip ourselves and our Pharma partners with the insights needed to increase predictability.
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We’ve committed to having 500,000 conversations in the next three years, to equip ourselves and our Pharma partners with the insights needed to increase predictability.
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We’re ready to keep forming links between our Advocacy friends and Pharma partners, so these fruitful relationships continue to evolve beyond the study-to-study view.
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