Dermatomyositis is a rare autoimmune disease affecting the skin and muscles. It involves muscle inflammation and distinctive skin rashes, typically appearing on the face, neck, shoulders, chest, and elbows. Treatment involves a combination of medications to reduce inflammation and modulate the immune system, along with physical therapy. With proper management, individuals with dermatomyositis can control symptoms and maintain an active lifestyle.
North Las Vegas, Nevada
Living with Dermatomyositis has been tough. I can't wear my favorite clothes, and even simple tasks are a struggle.
Patients are the experts in their condition and advocacy groups provide a platform for patient voices. Working directly with these communities is the key to pushing research forward in an inclusive way.
We’ve committed to having 500,000 conversations in the next three years, to equip ourselves and our Pharma partners with the insights needed to increase predictability.
The ever-growing investment in advocacy doesn’t appear to be slowing down, and research is certainly seeing the benefits. Which at the end of the day, means better patient care and more options for patients.
We’re ready to keep forming links between our Advocacy friends and Pharma partners, so these fruitful relationships continue to evolve beyond the study-to-study view.
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