Idiopathic Pulmonary Fibrosis (IPF) is a chronic and progressive lung disease where the lung tissue becomes scarred and thickened, making it harder for the lungs to function properly. The exact cause of IPF is unknown, but it is believed to be related to aging and genetics. Symptoms of IPF include shortness of breath, a dry cough, and fatigue, and it can lead to respiratory failure and even death.
I've been on oxygen 24/7, which is very frustrating because I've always been very active. Currently, I have pneumonia in both lungs, so for now, I can only sit, look outside, watch TV and nap. I'm also on Esbriet, not a cure, but slows the disease.
Patients are the experts in their condition and advocacy groups provide a platform for patient voices. Working directly with these communities is the key to pushing research forward in an inclusive way.
Understanding the causes and the potential treatments/cures that exist for IPF is important for patients. Learn from insights gathered from patients and advocates on how to navigate IPF.
Learn if IPF is a rare disease, what Idiopathic Pulmonary Fibrosis is and how the symptoms of IPF present to patients.
According to the National Institutes of Health, Idiopathic Pulmonary Fibrosis is a rare disease that affects about 100,000 patients in the United States.
Leapcure focuses on making patient voices a priority for researchers. We know that patients are experts in their condition and we value providing a platform for patients to share their experiences to help push research forward.
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