Lymphedema is a condition that occurs when there is a blockage in the lymphatic system, causing swelling in the arms, legs, or other parts of the body. It can be caused by a genetic predisposition, cancer treatment, infection, or injury. Symptoms of lymphedema include swelling, discomfort, and limited mobility, and it requires medical attention from a lymphedema therapist.
I have Lymphedema from Chemo treatment of Hopkins Lymphoma in my abdomen. I have it in all four of my extremities, some worse than others. Getting medical help and treatment is extremely difficult. I wear compression clothing and have found that going to a warm water pool 3 times a week helps control the damage. I want to know more about it so I can to help myself and others.
Patients are the experts in their condition and advocacy groups provide a platform for patient voices. Working directly with these communities is the key to pushing research forward in an inclusive way.
We’ve committed to having 500,000 conversations in the next three years, to equip ourselves and our Pharma partners with the insights needed to increase predictability.
The ever-growing investment in advocacy doesn’t appear to be slowing down, and research is certainly seeing the benefits. Which at the end of the day, means better patient care and more options for patients.
We’re ready to keep forming links between our Advocacy friends and Pharma partners, so these fruitful relationships continue to evolve beyond the study-to-study view.
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