Myelodysplastic syndromes (MDS) are a group of bone marrow disorders characterized by ineffective production of blood cells. In MDS, the bone marrow fails to produce enough healthy red blood cells, white blood cells, and platelets. This can lead to symptoms such as fatigue, weakness, recurrent infections, and easy bruising or bleeding. MDS can range from mild to severe and may progress to acute leukemia in some cases. Treatment options include supportive care, blood transfusions, medications to stimulate blood cell production, and bone marrow transplantation for eligible patients.
Patients are the experts in their condition and advocacy groups provide a platform for patient voices. Working directly with these communities is the key to pushing research forward in an inclusive way.
We’ve committed to having 500,000 conversations in the next three years, to equip ourselves and our Pharma partners with the insights needed to increase predictability.
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The ever-growing investment in advocacy doesn’t appear to be slowing down, and research is certainly seeing the benefits. Which at the end of the day, means better patient care and more options for patients.
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We’re ready to keep forming links between our Advocacy friends and Pharma partners, so these fruitful relationships continue to evolve beyond the study-to-study view.
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Myelodysplastic Syndromes (MDS) is a complex group of bone marrow disorders, affecting thousands of people worldwide. It's crucial to raise awareness about this condition to enhance understanding and support for those grappling with MDS. Leapcure is dedicated to empowering individuals and their advocates by providing a platform equipped with resources such as testimonials and connections to advocacy groups aimed at helping those with MDS.
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